
Bolton’s Bravery
With specialized, comprehensive care in hospitals tailored to the unique needs of pediatric patients, children’s hospitals help children and teens like Bolton defy the odds.
Every day, children’s hospitals help make moments possible. From providing access to the comprehensive care that children need to grow up to supporting children, teens, and their families with specialized treatment for some of the most complex illnesses. Discover more about the moments made possible by children’s hospital through patient stories from around the country.
With specialized, comprehensive care in hospitals tailored to the unique needs of pediatric patients, children’s hospitals help children and teens like Bolton defy the odds.
Children’s hospitals provide advanced care for the most complex conditions in environments specially designed for pediatric patients, allowing children like Isaac to thrive.
The specialized multidisciplinary teams at children’s hospitals ensure that children and teens – like Cami – can beat multiple complex conditions like cancer and heart failure.
The advanced, specialized care that children’s hospitals provide make moments – like Joseph beating pediatric brain cancer – possible.
With care delivered by specially trained pediatric clinicians, in environments designed just for children, children’s hospitals help children and teens – like Daniella – navigate complex medical conditions.
At only eight years old, Noah has spent more time in the hospital than most people do in a lifetime. Born with Cooley’s anemia, a blood disorder that prevents the production of hemoglobin and red blood cells, Noah relies on bi-weekly blood transfusions at Kentucky Children’s Hospital to stay healthy and strong. At every visit, Noah gets an antibody screening to ensure the donor blood is a perfect match and then undergoes the transfusion through a permanent port in his chest. As he receives each transfusion, Noah builds Lego creations, plays games, and visits all his friends in the DanceBlue Clinic—a student-run organization that fundraises for the hospital’s hematology and oncology practice. Through the DanceBlue Clinic, Noah gets to hang out with the student volunteers and has made countless friends, finding a second home at his children’s hospital. Thanks to the compassionate care he receives, Noah is growing healthy and strong! He loves to swim, play with his sisters, and spend hours building his favorite toy, Legos!
Caitlin’s pregnancy with Jack was going well until a 20-week ultrasound revealed cleft lip and palate. After learning that this condition can cause problems with feeding and speaking, among other complications, Caitlin and her husband Patrick were scared for what the future might hold. Thankfully, they found a doctor at MUSC Shawn Jenkins Children’s Hospital who walked them through all the surgeries, speech therapy, and other treatments Jack would need. But as Caitlin neared her due date, she was diagnosed with a hypertensive disorder, causing Jack to be born early at 36 weeks. He spent his first three weeks in the NICU, and after he came home, he prepared for his two cleft surgeries. The surgeries went well, and now, as a toddler, Jack is an adorable curly-haired boy who is developing and talking normally. Jack will continue to visit the team at MUSC to combat any complications that may occur as he grows and develops.
After working with medically fragile infants as an emergency room tech, Bree McCarty was quickly inspired to become a foster parent for children with unique health needs. She and her husband, Tim, began fostering 4-month-old Carlos. While they didn’t have much information about Carlos’ complex medical needs, Mary Bridge Children’s neonatal follow-up clinic discovered he had hydrocephalus and was missing part of his brain. Carlos underwent multiple surgeries, including surgery to relieve the pressure on his brain and open-heart surgery. He also received a G-tube for nutrition. Carlos graduated from the neonatal follow-up clinic at 3 years old. Shortly after, the McCarty family celebrated Carlos’ long-awaited adoption and are thrilled to continue their life together. Continuing his care journey, Carlos works with therapists at the Mary Bridge Children’s Therapy – Puyallup and is now a bubbly 5-year-old who is thriving. Carlos is learning to walk and loves kindergarten, his siblings, and making people laugh. His parents say his adorable dimples help him get away with goofing around!
Monroe Carell Jr. Children’s Hospital at Vanderbilt recently introduced Angel 7, a first-of-its-kind ambulance in Tennessee. Angel 7 is the first ambulance in its group to offer extracorporeal membrane oxygenation (ECMO), a type of life support that provides oxygen to the heart and lungs in severe situations. While most patients can only receive ECMO once they arrive at a hospital, Angel 7 allows the team to provide this critical care for pediatric patients, like 5-year-old Gracie Conlon, while transporting them to Monroe Carell. Gracie suffers from an atrioventricular septal defect (AVSD). Earlier this year, she was exhibiting severe symptoms and needed ECMO support, but she was 200 miles away from the nearest ECMO center. Fortunately, Angel 7 was able to transport her while simultaneously providing the critical care that saved her life. Angel 7 has changed the course of critical care in Tennessee and will help more pediatric patients sooner and throughout the transport process.
Like many other college students, Jayden Goss was attending an Arizona State University basketball game. But as he was waiting for the game to start, he suddenly stopped being able to form words. Jayden soon discovered he had experienced a stroke. He struggled to find hospitals that could help him, but eventually Jayden wound up at Phoenix Children’s where they took a closer look at his heart. They diagnosed Jayden with three rare congenital heart defects that he had lived with since his childhood without knowing. Jayden underwent open heart surgery and later got a tattoo of his surgery date to commemorate this life-changing time. Phoenix Children’s is the only Adult Congenital Heart Disease (ACHD) treatment program in Arizona and the Southwest. While Jayden had to miss a whole year of college, he is ecstatic to return to ASU in the Spring of 2024.
In early 2023, St. Louis Children’s Hospital launched the country’s first-ever mobile pediatric diabetes unit. The Healthy Kids Express Diabetes Mobile Unit now travels to schools, where Washington University Physicians provide care to diabetic children while educating them on how to manage their condition. The mobile unit’s team trains school nurses to administer insulin shots and glucose monitoring machines to support children in the classroom. St. Louis’s diabetes mobile unit is also helping to overcome socioeconomic barriers by delivering care to children in low-income areas who may have limited access to healthcare and healthy foods. As diabetes continues to be one of the most common chronic diseases among children, this traveling unit is incredibly essential. The Healthy Kids Express Diabetes Mobile Unit will continue to bring necessary and accessible diabetic care to children across northern St. Louis County. This unit was made possible thanks to generous donations to the St. Louis Children’s Hospital Foundation.
Two days after Kitson was born, doctors discovered an open atrioventricular canal in her heart—a familiar yet frightening condition that commonly impacts infants with Down Syndrome. Filled with confusion and fear, Kitson’s family found themselves at Cook Children’s Health Care System in Fort Worth five months later, where the Cardiac Intensive Care team met them with open arms. As they operated on her for several hours, the team went the extra mile to comfort Kitson’s family as they paced the hospital awaiting news. But after a successful surgery, she quickly developed pulmonary hypertension. The care team returned to the drawing board, carefully tailoring a treatment plan that helped her lungs become strong again. Throughout Kitson’s journey, the staff never hesitated to make her family feel loved and encouraged, providing a circle of support when they needed it most. Kitson is now back home in New Mexico, a happy and spunky baby. The team at Cook Children’s continues to offer guidance from afar and will forever hold a special place in the Bell family’s hearts.