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Pediatric partnership brings Disney magic to Rezen

Kapi’olani Medical Center for Women & Children has been Rezen’s home away from home for more than a year. The 10-year-old was diagnosed with aplastic anemia, a rare and life-threatening blood disorder. Last year, she received a bone marrow transplant and spent months in the Pediatric Intensive Care Unit. Despite these challenges, moments of joy and comfort shine through her journey. When Rezen was nervous before a routine MRI, her child life specialists gave her a Disney Princess-themed Starlight Hospital Gown to add a little magic to her stay. The Walt Disney Company and the nonprofit Starlight Children’s Foundation bring Disney Princess-themed Starlight Hospital Gowns to pediatric hospitals across the nation, helping patients like Rezen feel more comfortable during treatments. Through this long-standing collaboration, Rezen has received numerous princess gowns, building up an impressive collection. In December, Rezen completed her princess collection, receiving a Moana-themed gown, and attended a special private showing of Moana 2, experiencing the movie’s adventure before its official release! Navigating a rare disease comes with immense obstacles, but collaborations like this bring light on difficult days. Disney-themed Starlight programs, along with her care team, help make Rezen and thousands of other pediatric patients feel the magic and inspiration every child deserves.

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Patient story with Ernesto Prieto during OT and PT appointments at the Burnsville Clinic of Gillette Children’s in Burnsville, Minnesota on Thursday, July 27, 2023.

Growing stronger every day with his specialized care team

Shortly after Ernesto’s premature birth, nurses discovered he had cerebral palsy, a condition that affects movement, muscles, and posture. When Ernesto was six months old, his mother, Dalia, brought him to Gillette Children’s Cerebral Palsy Institute, one of the world’s top innovators in clinical care and research for patients like Ernesto. Here, he received an Infant and Toddler Development Evaluation to determine the best comprehensive treatment plan for his unique needs. As experts formed his treatment plan, the team outlined every medical service for Dalia, making her feel prepared and at ease. Now, at two years old, Ernesto regularly meets with an occupational therapist, physical therapist, and rehabilitation medicine physician. He continues to get stronger and exceed expectations. His therapists and physicians say he’s a delightful and social boy who works hard to improve his abilities. Today, Ernesto can be found zooming around on his gait trainer in the hospital’s therapy gym alongside his physical therapist. Dalia is excited to continue watching him grow and thrive with help from this team at Gillette Children’s. 

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Specialized care makes Ashley’s dreams a reality

Diagnosed with Spinal Muscular atrophy, a serious genetic neuromuscular condition, at birth, everyday tasks were a hurdle for Ashley. With debilitating muscle weakness and problems with voluntary muscle movements, it was unclear whether she would ever reach her goal of attending college and living independently. Thanks to the expertise of numerous specialists at Gillette Children’s including neurologists, pulmonologists, cardiologists, physical medicine & rehabilitation providers and internal medicine and pediatrics providers, Ashley was able to receive specially tailored and cutting-edge therapies. Ashely’s dream of going to college became a reality thanks to the dedication of her complex care team. Therapeutic recreation and social work played supporting roles in connecting the medical pieces of her puzzle by using tools, strategies and educational interventions to plan for the logistics of going to college with a rare and complex medical condition. Now, Ashley has completed her sophomore year at the University of North Dakota, where she is pre-law, studying criminal justice. 

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