From resident to advocate for young adults with complex conditions
Stephanie has lived most of her life at Elizabeth Seton Children’s Center, starting her journey there at just three months old. Since she was born, she’s faced immense medical challenges, including spina bifida, Arnold-Chiari malformation, neurogenic bladder, and hydrocephalus. Despite enduring numerous painful and high-risk surgeries, Stephanie’s courage and love for music and art have helped her through her toughest moments. Now, at 26, she is a vibrant young woman, known for her stylish outfits and exuberant personality. As Elizabeth Seton Children’s International Spokesperson, volunteer, and an Associate of the Sisters of Charity of New York, Stephanie advocates tirelessly for young adults with complex medical needs who age out of pediatric care and face uncertain futures. She is a role model, demonstrating that life is full of possibilities. Stephanie is now focused on raising awareness for a future young adult center to ensure young adults with medically complex conditions like her can receive the care they need to reach their fullest potential.
