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Growing healthy and strong with life-saving transfusions

At only eight years old, Noah has spent more time in the hospital than most people do in a lifetime. Born with Cooley’s anemia, a blood disorder that prevents the production of hemoglobin and red blood cells, Noah relies on bi-weekly blood transfusions at Kentucky Children’s Hospital to stay healthy and strong. At every visit, Noah gets an antibody screening to ensure the donor blood is a perfect match and then undergoes the transfusion through a permanent port in his chest. As he receives each transfusion, Noah builds Lego creations, plays games, and visits all his friends in the DanceBlue Clinic—a student-run organization that fundraises for the hospital’s hematology and oncology practice. Through the DanceBlue Clinic, Noah gets to hang out with the student volunteers and has made countless friends, finding a second home at his children’s hospital. Thanks to the compassionate care he receives, Noah is growing healthy and strong! He loves to swim, play with his sisters, and spend hours building his favorite toy, Legos!

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Defying the odds after Down Syndrome diagnosis, heart surgery

Two days after Kitson was born, doctors discovered an open atrioventricular canal in her heart—a familiar yet frightening condition that commonly impacts infants with Down Syndrome. Filled with confusion and fear, Kitson’s family found themselves at Cook Children’s Health Care System in Fort Worth five months later, where the Cardiac Intensive Care team met them with open arms. As they operated on her for several hours, the team went the extra mile to comfort Kitson’s family as they paced the hospital awaiting news. But after a successful surgery, she quickly developed pulmonary hypertension. The care team returned to the drawing board, carefully tailoring a treatment plan that helped her lungs become strong again. Throughout Kitson’s journey, the staff never hesitated to make her family feel loved and encouraged, providing a circle of support when they needed it most. Kitson is now back home in New Mexico, a happy and spunky baby. The team at Cook Children’s continues to offer guidance from afar and will forever hold a special place in the Bell family’s hearts.

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