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Pediatric partnership brings Disney magic to Rezen

Kapi’olani Medical Center for Women & Children has been Rezen’s home away from home for more than a year. The 10-year-old was diagnosed with aplastic anemia, a rare and life-threatening blood disorder. Last year, she received a bone marrow transplant and spent months in the Pediatric Intensive Care Unit. Despite these challenges, moments of joy and comfort shine through her journey. When Rezen was nervous before a routine MRI, her child life specialists gave her a Disney Princess-themed Starlight Hospital Gown to add a little magic to her stay. The Walt Disney Company and the nonprofit Starlight Children’s Foundation bring Disney Princess-themed Starlight Hospital Gowns to pediatric hospitals across the nation, helping patients like Rezen feel more comfortable during treatments. Through this long-standing collaboration, Rezen has received numerous princess gowns, building up an impressive collection. In December, Rezen completed her princess collection, receiving a Moana-themed gown, and attended a special private showing of Moana 2, experiencing the movie’s adventure before its official release! Navigating a rare disease comes with immense obstacles, but collaborations like this bring light on difficult days. Disney-themed Starlight programs, along with her care team, help make Rezen and thousands of other pediatric patients feel the magic and inspiration every child deserves.

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Jagger heads home after 548 days in cardiac care 

One-year-old Jagger spent the first 18 months of his life in the hospital as Children’s Nebraska’s longest-running Cardiac Care Unit (CCU) patient in recent memory. After his mother went into labor early in April 2022, Jagger’s congenital heart condition was discovered, and his family anticipated a 6–8-week hospital stay. Instead, they remained at Children’s for 548 days. A bi-ventricular repair with Children’s Cardiothoracic Surgery team in July 2023 was the turning point, correcting his heart’s structure and function with two working heart chambers to put Jagger on the path to going home. With the care of Children’s Rehabilitation Services team, Jagger skipped crawling and progressed to standing and taking steps prior to discharge in October 2023. On the family’s final day at Children’s, team members across multiple disciplines gathered for a final “CCU Later”-themed celebration, lining the halls and sending Jagger and his parents’ home in style. Jagger stole the show by walking out of the room – important steps for a little one venturing into a big world full of possibility.

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Bonnie Ryan, Children’s Nebraska

Critical care positions Angelina for a bright future

Angelina was enjoying another day of fourth grade in January 2023 when she suddenly collapsed because of ventricular fibrillation (VF), a life-threatening arrhythmia that can lead to sudden cardiac arrest. School nurses quickly intervened with CPR, paramedics defibrillated her heart, and she was later flown to Children’s Nebraska’s Criss Heart Center for surgery. There, a cardiothoracic surgeon placed an implantable cardioverter-defibrillator (ICD) in Angelina’s chest. Her ICD tracks and analyzes her heart rhythm and will deliver a shock to her heart if she ever experiences an irregular, life-threatening arrhythmia again. Because of the quick response from her school nurses, paramedics and the expert team at Children’s, Angelina is healthy and back in school. Her school also achieved a Heart Safe School designation through the hospital’s Project ADAM program in May 2023, ensuring advanced preparedness for an unexpected cardiac event with automated external defibrillator (AED) and CPR training and a practiced response plan that improves safety for students, staff and community visitors alike. Now 10 years old, Angelina has since returned to her active lifestyle, playing the violin and piano and participating in basketball, volleyball and dance. She and her family feel supported and prepared for her future thanks to the care Children’s delivered.

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High School Made Possible by Critical Heart Care

Beau is a lifelong heart patient at Children’s Nebraska. Born with pulmonary atresia with an intact ventricular septum, a condition that leaves the body’s blood with a lack of oxygen to support it, he underwent three surgeries as an infant and child to palliate his single ventricle heart disease. In 2022, he had an unexpected heart attack shortly before his senior year. Thanks to the Criss Heart Center’s collaborative, comprehensive care, Beau received the treatment he needed quickly and was able to enjoy his final year of high school. And it proved to be a year of incredible moments, with Beau being named Homecoming King and valedictorian of his 2023 graduating class. Beau continues to receive treatment from Children’s through their Adult Congenital Heart Disease (ACHD) program.

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